Truthful Thursday

Wednesday Schedule Unscheduled

The kids are on spring break. I’m on long-term leave. I had septoplasty (out-patient surgery to fix a deviated septum. This was my third scheduling of the thing. If it didn’t happen, I was done trying. Third time was the charm!) last Friday. It is probably the most minor surgery I’ve ever had done unless you count wisdom teeth, but even for that I woke up in the middle of and remember being a lot more miserable and in pain from that one. That could throw an additional wrench in any plans or dreams we had for this week.

i decided to keep it fairly low key the first couple of days. Every time i asked the kids what they wanted to do for spring break they said veg and play outside. The weather had not been promising us any sort of Spring in the Midwest, so I wanted to have some manageable adventures up my sleeve.

Here’s my list:

  • swim at the community center
  • see the Crown Center to see the Wizard of Oz 80th Anniversary interactive display
  • go see a movie,
  • day trip to Columbia
  • take Aaron to a vegan restaurant, The Happy Apple, in the UMKC area
  • take Allyson to Dairy Queen for a free cone on Wednesday (I think it was because it was the first day of Spring).
  • trips to the library, maybe even Woodneath (a forty-five minute drive)

This seemed like a pretty manageable list of things for us to do. Nothing, except Crown Center would be the thing that could have tricky mobility ramifications. Our Day trip in Columbia had one for sure visit and that would be to Papa’s Cat Cafe which I knew I would be able to navigate enough to take the kids there.


Wednesday. I was hoping for a fun day. I figured a little more than 30 minutes drive time to get to Crown Center. I had scheduled out thing in my mind: 10 or 10:30 arrive at Crown Center we could spend 15-30 minutes there depending on when we arrive and how much time the kids wanted to spend. These free events were geared mostly toward the 4-10 age, so I figured we wouldn’t spend a lot of time there and if it was a flow we could always walk around to the shops and see the crayola cafe. If the kids wanted we could eat at Crown Center instead. Then we’d dine and head to my first appointment at St. Luke’s Plaza. Depending on the time, I had to swing by a friend’s home in Hyde Park and pick up a cool table she’d made just for me. We’d drive back to town and go to my second appointment at St. Luke’s East for some pain treatment for my spine and sacrum. After that I wasn’t sure what we’d do. Old Navy was having a sale and Allyson needs a new swim suit. We could go get ice cream at Dairy Queen hoping to avoid the after-dinner and still working crowd, too.

Well, I went to bed around 9:45 Tuesday night. Hoping that I could fall asleep soon. I had one more night of the removable septoplasty side-effects: packing in my nose and sleeping above a 30 degree angle (how do you measure this? Have your husband measure with a giant protractor? I just said, okay, half of 90 is 45. If i stay staying up half-way, I’m covered if I squirm down a bit in the night.

1:40 AM Wednesday. I was still awake no pain medicine, no heat, no ice, no lidocane patch was going to take the sciatic pain away. Whole left leg affected. It happens any time I’m seated or laying down on my back. It sucks. What happens is eventually the exhaustion from the pain takes over and I fall asleep. This was about 2:30 AM when it finally happened! But, I didn’t set an alarm. I didn’t want to. I knew how tired I was already and I knew that if i didn’t let my body sleep as much as it could, Wednesday wouldn’t happen at all except for doctor’s appointments and it may only be the nose one at best.

9:30ish AM Aaron finally knocks on our door. “Can I put on a show in the living room?” I know he’s been up reading quietly waiting for the rest of the family to wake up. Allyson, these days sleeps 12 hours. Welcome to being a toddler part two, aka. Teenager phase. “Sure. I give a thumbs up, too in case he cannot hear my horse voice. Chris gets up and starts making coffee and talking with Aaron. Chris brings a cup of coffee in and sets it on my night stand. “Coffee’s done.” He leaves and goes about his morning business. i don’t move. I am willing the coffee’s smell to wake me up more. Eventually it’s the pain that wins out. I know i’ve got to manage to sit up to get some pain medicine so I can get out of bed. So this is about the pace of my morning. I didn’t make it. It was 10:30 before we were ready to leave the house.

Things get in the way of leaving quickly when you’re a patient with chronic illness and traveling more than 10 miles from your home (which is most trips unless it involves Target, the US Post Office or the library. You have to pack your “go” bag. (It sounds better than diaper bag, although sometimes I wonder if Chris and I aren’t far from needing one). We have snacks that won’t interfere with our stomachs, lots and lots of bottled water, snacks for the kids, entertainment for the kids, Joe and Bob and Jay or Jay’s cousin, Roelenator (This is the Rollator, I believe he’s the walker equivalent of the Terminator). Today I wanted to go out in my jeans, but for one procedure needed clothing with no metal and elastic waist pants. It’s also in an in-between springy weather phase, where it’s nice out until the wind kicks up. I packed baseball hat, sweater and yoga pants today.

Are you tired just hearing what it takes to leave the house? Me too. But we made it. Chris was hesitant on if we’d make it to my appointment opting for the Happy Apple Cafe, despite my pleadings that it’s no different than going to Spin Pizza, which is where we ended up (and running into people we knew! (Happens every. single. time. in this city. Kansas City is the biggest little town there is.) We ate and made it to my appointment with five minutes to spare. We were in the room on time. Never happens there’s always an emergency or patient who needs a little extra attention. This doesn’t bother me most of the time, because I am that patient, too, who has needed and may need the extra time with the doctor. I’m always updated and always apologized to. It makes it better.

Okay, I’ll hurry this up. Made it to get my table and to the epidural. Epidural hurt as bad as my pain in m left leg and hip ever does, because those nerves in my spine are right where they put the medicine. They were angry little buggers. Chris wasn’t feeling well by then end of the procedure.He had to go home. When we arrived, I lost all energy. A nap seemed to be calling me from the bedroom. NOPE. RESIST i told myself. It was only free cone day once and I wasn’t going to disappoint my people. I tried to save the day offering a trip to any park within a ten mile radius. “You know I’d really just rather play with Adam,” Aaron says about his neighborhood best friend. “Yeah. I want to ride my bike,” Allyson adds. “Okay. Go outside.” I opt to join them. of course it takes me a lifetime to get my book, paper, pens, phone, drink and blanket outside (remember the wind is chilly). I read for maybe five minutes before Allyson’s bike was ruined because th handle bars wouldn’t stay up. “See?” she asks me. Inside my head says, “Yeah, because you keep wiggling them up and down like that!” I try to get Chris to help, but he’s on a mission to rid vermin from our yard. Eventually I make it to his “tool” box in the garage and get the monkey wrench set. This doesn’t mean i fix it immediately. She’s wondered off. Chris needs something and the bike needs to be brought to me and held so I can hold the handle bars and the wrench at the same time. Allyson and I are finally commencing and Chris comes through the back door to the patio. “Here, give me that.” He has no confidence in my ability. Although before him I fixed a lot of stuff.

EVENING: We make it to Culvers, the kids turn in Scoopie tokens they’ve been saving and get a free kid’s meal and a stuffed cheese curd. We get ice cream at DQ and go to the park. I swing. YUP. It’s been about two years. The shot was working already. My pain was low enough that I could sit on a swing and swing. It was only two minutes, but boy it was fun and felt good. We went to Old Navy. It was a bust for swim suits, but Aaron finally found his “Toby Mac” Sunglasses and we found Royals shirts for the whole family (30% off). What do you think of Aaron? Did he achieve the look? We swung by Lowes for more vermin control items and made it home. Full from a day fully lived.

Thursday may not be as eventful, we will need the extra rest. Even when your best plans are laid out with contingencies, chronic illness doesn’t always follow the plan.







Creative Endeavors

It’s already been a week. We have a day and a half left.residency collage 2018 summer

The sentiment on Sunday seemed to be we all felt like we’d been her  awhile already and had work a lot. Then today sitting in the lobby talking with fellow students the consensus is that, Can it be over alread?

So what? So what is that I want you to know that my journey of getting my MFA in creative writing was a selfish endeavor. I applied out of fear, anger and insecurity. I applied out of LOVE for words. I didn’t know what life I had left. I didn’t know how much longer I might be well enough to complete a program and prove myself as a writer.

I needed this. It keeps me sane. It gives me purpose. It builds a legacy. It is my tribe where I don’t feel weird and abnormal. I’m not judged or forced to fit in a hole that isn’t my shape.

But I wanted to write this to encourage EVERYONE to follow your heart, your gut, whatever you call it.

I have gained so much for my self. I have grown as a writer. I’m so much smarter now (and I’m only half way through the program). The coolest byproduct is this:

allyson story

Allyson is diligently working on her own story and the illustrations to go with it. This is her drafting. I didn’t teach this. She has just absorbed this from watching me create.

This is my heart. I love to write. I love to read. I love to teach others about writing. I love the immersion.

Wildly beautiful.

Being outside is my favorite place. I have always been the early bird (until a couple of years ago–a result of the increasing Cushing’s Disease exhaustion). This morning I woke a little before five am. After fighting to go back to sleep for about fourty-five-five minutes, I decided to get up, take my morning medicine, and use the bathroom. I went back to bed, but couldn’t lay still.

I could nap later, I thought. I started coffee then waited at the back door. There she was. This beautiful red-brown creature heard me bump the wooden blinds and turned toward the noise.

Beauty is wild, unable to be captured and tamed.

She was just on the edge of the field nearest our yard. My brain assumed it would be her, our neighborhood doe.

We stared in awe of each other for about a minute. Then it moved and a long fluffy tail went out behind it. I hadn’t spotted her.

“It’s a fox!”

Allyson awoke from her sleep on the couch, startled by my words.

“What mom?”

“There’s a fox. I thought it was the doe. But it’s-” I loudly whispered.

Movement in the further part of the field closer to the trees that line the road interrupted me; now I spotted her, the doe.

I had been holding my phone, so I stumbled around the folders and apps and got my camera open. They were faster. I wanted video. I should have just started snapping.

First the fox began running. She reacted quickly. They both ran at the same pace, it seemed. At that, she would never be caught. I was sure. Maybe it was just a morning game for the fox. Maybe the fox is sick and couldn’t catch her for breakfast.

They disappeared behind the home next door and I went back to my bed.

“Wonderfully beutiful,” I said to no one. Allyson had gone to the bathroom.

I knew sleep would not return to me, so I got my coffee, headphones, book and pen.

The outdoors we’re inviting me. Settled in my lounge chair on the patio, I spotted her safely muching in her field.

Find a Hobby

20180606_161651_HDR
20180524_203500_HDR

Attending some sort of counseling is important when going through any health crisis whether short-term or chronic. After the diagnosis of my pituitary tumor, I started to see someone to help me process through and prepare for neurosurgery. I have quit counting weeks out. I think I’m somewhere around 10 weeks or so. But I had a really rough week about a week ago. I have had new pain in both hips. I’m still searching for one doctor who will help manage my fractures and see me when I have new pain. However, I have great doctors (ENT and Endocrinologist) who in the mean time ask me about all of my health and order the x-rays and MRIs when I have these pains. So in the last two weeks, we have learned I have a fourth fracture in my right pelvis, possibly a new one in the left and fractures on both of the “wings” of my sacrum. Tomorrow I will have another MRI, this time of my sacrum to get better views of the fractures. Unfortunately, there’s really not anything more we can do except rest and manage with pain medications.

One way to cope with plans and outcomes being different from what you expect, is to focus on the positive and to make conscious efforts to participate in the things that bring enjoyment. My counselor posed this question to me after we found out about the new pelvic fracture.

“What are your hobbies?”

This made me want to cry. My list: Writing, Sitting on my patio and studying the Bible, Reading, Gardening, Playing with the kids, Mowing the yard, Going to the prayer room, Walking around gardens/parks, crocheting. Are you thinking many of these are things you can do without needing to walk? They are; however, when you factor in the exhaustion and the effects of the pain medicine on my focus even writing and reading are things that I have to do when my mind is clear and able to focus for more than five or ten minutes.

As I’ve been processing through my recovery not being what I had made it up to be in my mind, my homework has been to engage in the hobbies I can still do. My writer and teacher friend, Elizabeth, asked me at about the same time if I’d hostess an online FB party for the makeup she uses. I said sure, but wasn’t looking at benefiting from it. I was doing it to help her out and maybe try one product. She had been raving about the mascara. Well, I started looking into their products because I have such sensitive skin and eyes. It makes it difficult for me to find any product I can stand to wear and not have a reaction to. Younique is it. Right there on the page with the product is every ingredient and why they put it in the makeup. I fell in love with the makeup and learning (at 37) how to really do makeup. I thought it was going to be a chore, but instead it’s become a new hobby. It’s one I can do physically and spend as little or as much time in as I’m capable of spending. The best unexpected result is a group of ladies who know and act as though beauty comes from the inside and makeup is something we do to accessorize our beauty and express our individuality.

So what are your hobbies? What have you been saying “no” to out of fear or human judgement? Is God knocking on your heart to open up to unknown possibilities?

God promises in Jeremiah 29:1-141 to prosper you. We have to trust and keep hope. “For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope. Then you will call upon Me and go and pray to Me, and I will listen to you. And you will seek Me and find Me, when you search for me wiht all your heart. I will be found by you, says the Lord, and I will bring you back from your captivity; I will gather you from all the nations and from all the places where I have driven you, says the Lord, and I will bring you to the place from which I cause you to be carried away captive.”

He WILL. Not he may. He WILL.

Cushing’s at 5 weeks post op

(Disclaimer: Hi! Just a reminder, this is essential a diary/journal-type entry in my Cushing’s Disease recovery. It contains thoughts, complaints, pictures, etc. Cushing’s is rare and affects so few. For this reason, I wanted to put my journey out in hopes of helping others who might be going through this as well. I also do very little revision/editing to keep it authentic.)

The last two weeks have been about perspective and patience and strengthening my spirit in 2 Corinthians 4:13-18. It’s about the gratitude, the witness of a strong spirit despite physical suffering, and faith.

So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day… as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.

2 Corinthians 4:16-18

Perspective practice #1: We are five and a half weeks into the remission/recovery phase of the surgery. Weight loss is still avoiding me, but I haven’t gained. (by this time, it could have been possible for me to gain another 30, 50, or 70 pounds). I think I see a difference in my face. I can see a more defined jawline coming out. What do you think? (I HATE smartphone cameras and selfies. I do much better at photos with a SLR.)

Here’s my face, but also some skin on my stomach where I had what I thought were stretchmarks, but it’s purple lines that show up as a result of the tumor.

These are my pre surgery/in hospital post surgery photos of my face and my skin on my stomach.

20180402_000715

face six weeks2

skin pre surgery

skin at 6 weeks

Perspective practice #2: We saw the ENT on Wednesday. The sinus cavity and nasal passages look good. She says it’s healing nicely. She cleaned out more packing, estimating there’s only about 5% left up there. I am breathing better than prior to surgery and the sinus-type headaches have stopped.

Perspective #3: I’m getting to try out what it’s like to need and use the emergency dosing of hydrocortisone while still restricted on my activity level/work. This whole remission/recovery/regulation stuff seems like it could be more exact and efficient. So I had some stressors (Sick dog, news that Chris will need another stent in his pancreas, ENT follow up, sinus infection, tornado warning/bad weather) this week.

Perspective #4: While the fatigue has continued, its affects are wearing me out more. So, I make lists. Lists make me feel like my good ideas and intentions are active members of my family. Here are two from the last two weeks:

Things I still haven’t had enough energy to do: church, grocery shop, go for a walk around the block, work, any sort of project that requires sustained energy/focus, pull out the summer clothes and sort through them, and do any sort of spring cleaning (this may be the biggest disappointment out of them all).

Things I was able to do this week: eat out at Panera with my family, go for a ride with my parents around Lake Jacomo and Blue Springs Lake to enjoy the red bud trees and sunny warm weather, complete reading two manuscripts I am editing, finish reading two books, water my houseplants, sit outside on our patio and read, make meatballs for dinner one night, and make it to and from a doctor’s appointment.

This week marked that six-week post op when supposedly things flip. My physician’s assistant from the neuro office says she has had many patients say that at week six, it was like a switch was turned on and they felt much better. I would say I had moments where I felt somewhat normal (if I even know what that is), but I still have days where I cannot get out of bed and sleep most of the morning.

Autism: Beautiful “Human Variation”

I wanted to share some posts I’ve come across that, for me, are noteworthy because they stray from what is at the forefront of “news”/popculture/social media feeds when it comes to autism, people with autism, and Autism Awareness Month.

For the first time, I read Dr. Ericka Price’s writing on Medium.com about a month ago. I have not spent a lengthy amount of time researching her or all of her beliefs; however, her perspective on living a life as a woman with autism is refreshing. It’s her mindset on having autism and living with autism (I don’t ascribe to agree with her on all perspectives on life in general) that draw me to her writing. I love how authentic she is in sharing what it is like to be woman on the spectrum.

e.pricequote.autism.humanvariation-4014636658-1524132709440.jpg

Two articles I recommend are:

Next, I want to introduce you to Steven Wiltshire, Steven creates art. Many know him from his life-like, detailed cityscapes. Steven was diagnosed with autism at three. He didn’t speak and used drawing and art to communicate. You can read a brief biography here.   Watch a video of him narrating and drawing and check out the viral video of Steven drawing Rome’s Skyline from  memory after a helicopter flight.

Some of my favorite pieces of his:

Happy Autism Awareness month. Please share in the comments. Do you have other unusual or peripheral articles, people or websites that further education on autism or help in healthy role models?

 

          “Now there are varieties of gifts, but the same Spirit; and there are

               varieties of service, but the same Lord; and there are varieties of activities,

         but it is the same God who empowers them all in everyone.”

1 Corinthians 12:4-6 ESV

https://medium.com/@dr_eprice/autism-is-a-creative-boon-b9974e137099

Journal Update 4.15

Good evening! (as I typed that I heard the Count from Sesame Street saying it instead of me.)

I figured it was time for an update. This week I have had to battle discouragement. Discouragement because I’m still feeling tired, but more in not seeing weight loss or the fading of the purple marks on my skin. I still have “moon face”. On top of this struggle, I had several appointments this past week and it wore me out.

The Run Down:

Monday: afternoon doctor appointment

Tuesday: Chris doctor’s appointment; Fourth Grade Wax Museum 5:30-7 pm

Wednesday: afternoon doctor appointment, stopped at Kauffman Garden

Thursday: 2.5 hour visit to GP’s office; The Fellowship Band practice

Friday: The Fellowship Band practice

Saturday: NOTHING

Sunday: Church; Fundraiser for our friend, Nicole

The Details of it all:

Wednesday at my doctor’s appointment, they checked on my nose/sinus healing.

Actually, by the time we got down to the Plaza, I was tired and wanted to be in bed. I am grateful we didn’t have to wait long. In the room, we got vitals and recorded. The doctor arrived lickity-split. We do the usual back and forth about how I’ve been and about how successful the surgery was. Once she has me relaxed and confident in my progress, she pulls out two long skinny probe looking things. She sticks one up the nostril and the other one is a microscope or something. She was pleased with the inside of my nostrils. However, she did trick me.

The nurse comes back with a release form for the procedure to pull out some packing. Yes the packing is dissolvable, but she wanted to remove some. While there was a release of pressure in my sinus cavity, it still hurt to have it pulled out. When she clamped onto the mass and started to pull it slowly, the ripping of its adherence to my tissue made me cry. All I could see was the weird probe and her forceps.  The packing looked like a prune in color and size. I couldn’t believe she was able to pull that out of a nostril. I joked about taking a picture, but decided we should spare everyone that sight.

Despite my fatigue, I couldn’t let it get in the way of the rare Missouri day. Our spring has been cold. It’s actually snowing as I type. So the 80 degree, sunny weather told me to ask to visit the Kauffman Garden. We pass it on our way home. I was able to walk around a little. We went inside the green-house type building, smelled the flowers and I got to pet the resident cat. Most of the flowers still hadn’t been planted, but could be enjoyed inside.

Flowers
Some of the flowers waiting indoors to be planted in the beds at Kauffman Gardens

By Thursday morning, my body was worn out. I was tired. I had no drive to get up and even walk to the living room, but I needed to follow up with my GP. She needed to check on my blood pressure and I hadn’t seen her since I received the Cushing’s diagnosis. It was a long wait. They were running behind. I had a lot of information to update them on. The good news is that my blood pressure is running on the low side of normal. If it continues to trend low, we can start taking me off of meds for hypertension.

So it’s been pretty much more of the same. I’m tired most of the time. My fractures don’t feel any different. I sleep when I can and dab at my nose to avoid blowing.

Have a great week!

-Crystal

 

 

Welcome Walker

I love most of the Facebook polls. If you were a teen in the 90s, do you remember the polls and quizzes in magazines? My friends and I would wait anxiously each month for latest issues of Teen, Seventeen and others. We put all of our stock into those quizzes and the truth of the data presented in the polls. I had been taking an inventory or collecting poll data myself for at least a year about the different pieces of DME (that’s hospital talk for durable medical equipment. It’s the category everything from adult diapers to mobility devices fit under). The results were inconclusive. The Walker and the cane and the crutches seem to be at a tie on which will bring the best mobility while alleviating the most pain.

Many of you know Joe and Bob.

Joe and Bob stand in rebellion of their directive to be retired.

They are the twins (crutches) who joined our family in August 2016. Before discharging me form the hospital, my doctors ordered a couple of visits with the PT (physical therapist). They wanted to check on Joe and Bob’s ability to continue to be support and pain relief during my recovery. However, I’m still not convinced they felt the gravity of the limitations of my fractures. They had to take into consideration my new restrictions, specifically “no bearing down and/or straining in any way.”

Joe and Bob stand in rebellion of their directive to be retired.

 

Joe and Bob supported me through all of this limited mobility crap. You don’t know how inaccessible the world is until you’re mobility is taken away. Bathrooms, doors, weather, crowds, aisle width all need to be taken into consideration when you determine if you’re going to go out. But Joe and Bob were unashamed, strong, unbending, although they caused the occasional armpit bruising. They are helpful in reaching across the room to turn of the light and scoot something you’ve dropped closer to you so you don’t have to get up to get it.

My PT suggested I go to the PT “gym” and try a walker, because Joe and Bob didn’t seem cut out for doing the job anymore. They needed a holiday.  It felt almost like a secret consipiricy between her and my orthopaedic doctors, who had suggested that it was my only other option that might bring me acceptable pain relife.

Well…I really fought my doctors, because I was already feeling old, run down and like I was on the downhill of life with the fractures, osteoporosis and other health problems. However, they all must have known that with the foggy brain from the surgery and the pain medicine, my guard would be down.

So I took a walker for a trial run out of the PT gym and around the floor. I was able to move faster and my laps around the floor didn’t make my lower back ache.

Here she or he is.  This is where the polling comes in! Are you as excited as I am? I need help naming Mr./Ms. Walker (I’m keeping the last name as Walker). walker

Nameless. She sits next to the bed to be used to help me get up and move around the house.

We’ve talked about names. We’ve discussed adorning her with duct tape, I personally joked about a white plastic basket with flowers and streamers like you put on a bicycle, but why not?

Now is your turn to help me out. Take the quiz below and help me choose a name and adornments for our new addition.

What's My Name? (It will keep the last name "Walker")

View Results

Loading ... Loading ...

What should I decorate my walker with?

View Results

Loading ... Loading ...

 

2 Weeks Out: Journal Update

I have received many texts, messages and cards asking how I’m feeling.

I answer truthfully, “I feel like crap. I’m exhausted and sleepy nearly all of the time and I have a headache that feels like a sinus headache. At its best, it only hurts when I move (this includes just moving my head up/down and left/right).

The looks I get when I tell someone this face to face are more than surprise. It’s shock. I’m not sure if that’s because in pretty much every surgery/procedure the expectation is that the patient’s quality of life and overall health should be improving. So after they close their gaping mouths, or if I’m responding via written communication, I let them know I am grateful, but this was as is to be expected.

Even I have to remind myself at those times when I’m feeling exceptionally run down and in pain, that this is what we want and it is what is expected for at least the first six weeks after the surgery AND I should expect it every time we step down my medicine.

Other ways my life is altered right now is the fact that I have to go to the bathroom every two hours. I’m releasing all the water I’ve been retaining due to the tumor. sleeping flat, on my sides, or on my stomach are only tolerable for a short time, if at all. No bending, stooping, straining or bearing down. I cannot sneeze/cough. If I have to i need to leave my mouth open. I cannot bear down or do any straining at all.

So, two weeks out my recap:

I’m still tired; but can only sleep for about 2 hour blocks of time before I need to get up, use the bathroom.

Headache is still hanging on and I have times throughout the day where the severity is as bad as it was a few hours post surgery.

My ice pack is still my favorite bedtime companion. It relieves a lot of the pain in my head.

What other questions do you have? Today i have my follow up with the ENT. Praying for good things and for her to see healing.

In two more weeks, I will update you maybe with some pictures of changes that are taking place as my body remembers what it should feel like with out the stress hormone at sky-high levels all of the time.

Lastly, I want to thank everyone in our home group, The Fellowship, our church family at Cornerstone, and my other friends who have been a source of physical, mental and spiritual support. The group who deserves a big shout out is my work family, Moreland Ridge teachers and staff. Today I was surprised with gift cards and gluten-free snacks to aid in my recovery.

Please take and receive my heartfelt gratitude for each one of you who have reached out, prayed, and read my blog. You all are important to my family and me.

 

Blessings,

Crystal

courtesy of “Today 20 Minion quotes” Follow the link to see it on its orgiinal site. https://bit.ly/2IJFZsf

 

Cushing’s Surgery Photo Essay

We arrived at the Marion Bloch Neurosurgery Institute at St. Luke’s a little before 6 AM. The nurses were ready to see me. Excited, kind and fun they made the prep ahead of time peaceful. I was accompanied by my cheer squad: Mom, Dad, Chris and the kids. They let everyone come back and wait with me in pre-op and they were all able to be there while each of my doctors came by and talked about the procedure and answered any questions. Afterwards, I had some trouble with keeping my oxygen up, so I spent a little extra time in recovery and then made it to my room, N215. I had the best nurses and nursing assistants. I am putting a little slide show on–the week in pictures.